Pearls for Practice is a bundle of sessions that were recorded live at the 2017 Annual Assembly.
The Pediatrics, Part 1 bundle contains the following sessions in MP3 format:
The Who, What, Where, When, Why and How of Medical Marijuana in Pediatric Palliative CarePresenters: Billie Winegard, MD MPH, Elissa Miller, MD, Tressia Shaw, MD, Matthew Troester, DO,
Objectives: Describe the pharmacology of medical marijuana and the forms available for pediatric patients, includin...
Objectives: Describe the pharmacology of medical marijuana and the forms available for pediatric patients, including a discussion of key drug/drug interactions. Describe state laws regarding the use of medical marijuana for pediatric patients and discuss hospital policy differences at children’s hospitals from different regions of the country. Identify the symptoms and diseases that a pediatric palliative care patient may benefit from medical marijuana use and discussed most recent evidence to support its use.
Clinical and Ethical Issues in Terminal Gastrointestinal Dysfunction in Children with Severe Neurological ImpairmentPresenters: Jonathan Mullin, MD, Robert Macauley, MD,
Objectives: Review the etiology, evaluation and treatment for feeding intolerance in children with neurological impairment. Formulate an approach to discussions surrounding withdrawal of artificial hydration and nutrition in children. Explore ethical, legal and religious considerations in withdrawing artificial nutrition and hydration in children.
Challenging the Paradigm of “The Lethal Condition”: The Case of Trisomy 13 and 18Presenters: Katherine Nelson, MD, Christopher A. Collura, MD, Kevin Madden, MD, Jordan Miraglia, MS LISW-CP
Objectives: Discuss the evidence (and areas of uncertainty) about survival and surgical interventions in trisomy 13 and 18. Describe neonatal resuscitation, intensive care, and potential barriers to family-centered care for neonates with life-threatening illness common in Trisomy 13 and 18. Compare and contrast the medical issues that face children with Trisomy 13 and 18 across their life span.Demonstrate the need for psychosocial intervention specific to life limiting illness in neonates.
But the Parents Wanted Us to 'Do Everything': Using Values Guided Decision Support in Pediatric ICU'sPresenters: Kenneth Pituch, MD, Tessie October, MD, Kathleen Meert, MD, Maureen Giacomazza, MA RN, D'Anna Saul, MD, Patricia Keefer, MD, Tracy Hills, DO
Objectives: Identify language used in framing an ICU decision using the “needs frame.” Identify language used in framing an ICU decision in the “parental autonomy frame.” Demonstrate language that elicits values and builds trust.
Truth-Telling In Pediatric Palliative Care: Challenges and OpportunitiesPresenters: Tracy Hills, DO, Adam Marks, MD, Christian Vercler, MD MA
Objectives: Review the existing data regarding practices and perceptions of truth-telling for children faced with a terminal disease. Understand the ethical principles as they pertain to truth-telling in pediatric palliative care. Review effective communication techniques for truth-telling and for navigating potential sources of conflict around truth-telling.