Pearls for Practice: Pediatrics Part 2 (2019)

Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases
Sarah Friebert, MD FAAP FAAHPM; Karen Fratantoni, MD MPH; Lori Wiener, PhD LCSW; Jennifer Needle, MD MPH; Jamie Fraser, MD PhD; Jessica Gaines; Melissa Alderfer, PhD; Maureen Lyon, PhD

Objectives

• Establish the need for a family caregiver intervention for parents of children with rare diseases.
• Introduce the intervention and its components.
• Disseminate findings from the piloting of this intervention.

Pediatric Concurrent Care:  Where Are We Today?
Khaliah Johnson, MD HMDC; Nancy Hutton, MD FAAP FAAHPM; Kimberly Bower, MD DC HMDC FAAHPM; Mary Tiso, RN; Judi Lund Person, MPH CHC

Objectives

• Describe the CCCR legislation and options available for its implementation.
• Identify barriers to implementing concurrent care in one’s state and strategic approaches to overcoming these barriers.
• Cite additional steps that may be taken to advocate for improved access to pediatric palliative care for Medicaid patients.

FR452 Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care
Rachel Thienprayoon, MD; Joseph Lane, BFA; Daniel Grossoehme, DMin MS

Objectives

• Discuss bereaved parent and staff perspectives regarding limitations for end-of-life care for children who die in intensive care units.
• Explain the process of co-creation sessions, and identify opportunity concepts for improving end of life care in pediatric intensive care units.
• Discuss multiple interventions to improve end-of-life care for children who die in intensive care units and their families.
  

Neither Pediatric nor Adult- Unique Care Considerations in the Adolescent and Young Adult (AYA) Patient Population
Alexandria Bear, MD; Melissa Atwood, DO MA; Suzanne Berg, BS CCLS; Heidi Miranda, BS MS CCLS; Catherine Van Schyndle, MS MSN RN ACHPN NP

Objectives

• Discuss defining characteristics of the adolescent and young adult (AYA) population.
• Outline unique palliative care considerations for the AYA population.
• Delineate proposed palliative care models for AYA patients.

State of the Science in Pediatric Palliative Care Forum
Katharine Brock, MD MS; Christopher Collura, MD MA; Margaret Root, MSN RN CPNP-AC CHPPN; Caitlin Scanlon, MSW LSW; Megan Thorvilson, MD MDiv; Pat Weikart, MDiv

Objectives

• Discuss with a colleague one new article relevant to the clinical practice of pediatric palliative care.
• Describe a fact, skill or attitude that you are reconsidering based on the information presented at this session.
• Identify a clinical population that your program serves that you could write about to educate the larger pediatric palliative care community.